Welcome to the journey of my 11 year old son name Dalen Seals. He was diagnosis with Optic Pathway Glioma on December 20, 2012. Optic Pathway Glioma is a type of tumor that grows along the optic nerve inside the brain that causes vision lost. This website is designed to take you along his journey of progress and to share his testimony. Also,If you would like to make a donation for uncovered medical and transportation expenses please feel free through this website.
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Sunday, January 13, 2013
6th Grade; 11years old....
Now my son is eleven years old and is in the sixth grade. He has been accepted to one of the best performing arts middle schools in Florida. Yes, we thought sports was his gift, but he also loves acting, singing, and dancing. He has been in over six plays throughout the last past three years. He is just an amazing kid, I call him Dalen the Entertainer! Did I tell you he knows magic, too. He's not only an entertainer and athlete, he is also an 4.0 student! Yes I had to tell you how awesome my son is!...for the last three years every three months my son has been seeing an eye specialist for his left eye that was diagnosis with Amblyopia (better known as lazy eye). He has to cover his right eye (good eye) everyday for three hours to improve his sight in the left eye (bad eye), which has been improving. His left eye was 20/2400 , but now its 20/150. This was great from where he came from. However, on December 10, 2012 on my son's regular three month eye visit, the doctor notice something was going on. I knew something was wrong because the normal thirty minute appointment was now three hours. His right eye that was 20/20 is now 20/2100 and his left eye that 20/2400 is now 20/80. His eyes flipped flopped and the doctor was scratching his head. At first the doctor thought my son was pulling his leg. He started telling my son how important it was to tell the truth during eye visits. I knew my son wasn't lying because he hated wearing the glasses and not to mention two hours everyday wearing a patch over his eye. The doctor reschedule my son for the following Monday for another visit. I guess he was hoping my so was pulling his leg! However, he wasn't on December 17, 2012 , my son gave the exact same results as last Monday. The doctor did not know what to think, he even scratch his head. My son was schedule for an emergency MRI Wednesday December 19 at 6:00 am in the morning. I was told the results from the scan would be given to the doctor by Friday, however, I received a call at 3:30pm the same day. I'll never forget how my heart dropped and my hands begin to shake as the doctor told me over the phone that my baby had a tumor on his brain. I didn't know what to do, think, or act....so a cried! And cried! And cried!!!! This couldn't be my son. Not my son who is so awesome and amazing at everything he does! This could not be my son!...(tears)......I left work early and as I was driving home I started to pray. This wasn't my first time praying about my son to God. My son and I pray every morning about everything we need, we are thankful for, or just because. But when I started to pray this day, The Lord spoke to me. He said "Haven't I taken care of him this far? When he lost his eye sight in his left eye didn't I take care of him? He kept playing basketball, he's been performing on stage...So, why wouldn't I do it know?" God's presence was so clear and I started crying even more, but now tears of joy and comfort. God is so good to me!...(tears).....on December 20, my son was referred to a brain surgeon and a pediatrician Neuro-oncology. They reviewed the MRI images and explained that my son has a tumor growing inside his brain called an Optic Pathway Glinoma. This is a common tumor in children ages 8 to 10 and is the cause of his impaired vision. Since this tumor is growing on his optic nerve it is not recommended to be removed because of the high risk of him becoming blind. The doctors recommend chemotherapy. Chemo will stop the growth of the tumor, which may cause it to shrink and maybe my son's eye vision can improve. My son will have to do chemo once a week for fourteen months. Yes, that is a long time, but I'm still grateful, it could of been worst! I was once again asked a ton of questions and I answered them all. The specialist smiled at my son and said" you are a special kid"... He said "I know!"...I told the doctor that my son just got done with a seven show production that was viewed by seven thousand people and he also just was in a dance recital on Tuesday in the front leading. There was no headaches, dry mouth, joint pain, weight lose, fatigue, etc...he just could not see that we'll. The doctor smiled again and said " You are one special kid!"...and my son said again " I know". ...
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I cried reading this. I am so sorry to hear about your son. Please let me know if you need anything. My thoughts are with you. And the doctor is correct he is special and he has a great mom taking care of him. -Angela s-
ReplyDeleteMy heart and prayers are truly with you and Dalen. I cannot even begin to imagine how you or he may feel or even if it was to happen to me but I do know that we serve as awesome God. You are an incredible example of a faithful servant and wonderful mother. I will keep you in prayer and please let me know if you need anything. Remember, God is in control and he will continue to shower you and Dalen with his many blessings. Stay faithful. -Tari
ReplyDeleteI keep Dalen in my prayers. I'm a classmate of Dalen's and I often help him with his work and reading for history and acting. I love all his jokes and how he brings a smile to my face every day I see him. I really hope he gets better and that he knows I will help him with anything. Dalen is the best and will always be. I'm glad he has a supporting family. Love ya Dalen!
ReplyDelete-Tayler King :-)