Welcome to the journey of my 11 year old son name Dalen Seals. He was diagnosis with Optic Pathway Glioma on December 20, 2012. Optic Pathway Glioma is a type of tumor that grows along the optic nerve inside the brain that causes vision lost. This website is designed to take you along his journey of progress and to share his testimony. Also,If you would like to make a donation for uncovered medical and transportation expenses please feel free through this website.
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Thursday, February 14, 2013
Vision lost...
Dalen went to school on Tuesday and Wednesday (yesterday). I'm so proud of him. He has been through so many changes and he keeps on moving on. This week he has been extremely tired but no stomach pain. He sleeps majority of the day without eating but drinks his daily Ensure shakes....after school on Wednesday Dalen came up to the recreation center. He was doing just fine running around and playing with friends from his Elementary school. Around 5:00 pm Dalen runs towards me yelling mommy I can't see! Mommy I can't see! My eyes are getting worst mama! He was panicking and started bursting out in tears. I didn't know what to do; I just suggested that he sit down and relax. I somewhat already knew his eyes were decreasing because I often ask him questions about his vision through out the day. I talked to the doctors on Tuesday and schedule an eye appointment on Friday morning because I've been concerned about the decrease in vision. But Wednesday events really shock me! it seems like the vision is decreasing more rapidly nor dalen or myself expected this drastic eye vision loss. After Dalen calmed down, I told him to continue to keep calm. I reminded him of the last eye visit when the doctor had told him that his eye vision had flipped flopped but he still saw as usual. I wanted to break down and cry with him but I couldn't because I have to stay encouraged and know that everything will be just fine for him. This is the hardest situation I have ever had to go through. And I know it's harder for my Dalen. Today he will have his fifth chemotherapy treatment and doctor's appointment with the oncologist. Please continue to lift my son Dalen up in prayers. We believe God is able and everything happens in his plan and time.
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Chairmain my name is Lisa and I got the link from Ken today. I read the past blogs and I am so in awe of you and your Dalen! He is truly an awesome young man! I recently cared for my boyfriend who had lymphoma. Dalen's strength and courage surpass my Brian (50yrs old). I will be in prayer for both of you daily. I will also gain prayers of others. I have other experiences with but none at all to know what you are going through. I will be in touch.
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