Wednesday, May 25, 2016
Runway to Hope 2016....
What a Night!!!! Runway To Hope just amazing!π Mark E. NeJame and Runway to Hope thank you so much for having a vision. For the last 4 years you have changed our lives forever..Dalen had been sick with severe stomach and back pain all week that included three trips to the hospital. But last night you would have never knew what he and so many other children go through. Thank you for allowing our amazing kids to be Super Starsππππ
Wednesday, May 18, 2016
Trojan Power...
I am so proud of my Dalen Seals. He performed his song "Trojan Power" at his high school's talent show on Wednesday April 27th. His performance was great! At the end of his performance he gave Trevor a shout outππEvans High School Talent Show
Dalen was also asked to perform his song again the next day at his school's mentor engagement. I heard everyone love the song and performance. We did not receive good news from Dalen's MRI results. So we are just going to enjoy this awesome experience. ππππ½π
Trevor's Fight....
Dalen's dear friend Trevor gained his wings April 30, 2015πππ
This news just broke my heart and it took me a couple of days to find the strength and words to tell Dalen his friend has gained his wings.σΎΉσΎΉ
There are no words I can express to comfort you Jody Ellis Scheerer, Emily, and Tim. Trevor was just such a sweet little boy , who we loved dearly❤️❤️ his giant smile, awesome dance moves, great sense of humor, and his loving and caring personality will forever live in our hearts. You and the entire family are in my prayers and we love you allσΎ❤️
please continue to pray for the Scheerer family as they face this difficult time.
#trevorsfight #teamdalenseals #morethan4 #childhoodcancer #fuckcancer
Mini Vacation....
We had planned a mini in-state week vacation to the amusement parks for Mother's Day; but I changed it to a Before New Chemo Treatment Vacation! Lol I just wanted to get our mind off the new treatment and deit to focus on family.
However Dalen had a 101.8 fever on Monday that brought him to the ER. Thank God his counts rised enough to fight the infection. His counts was the highest it has ever been since treatments started in 2012; which I was super surprised.
Dalen was ready to go by Wednesday so we visit LegoLand for the day. We had to rest on Thursday because he was exhausted from the day trip.
Please continue to keep Dalen in your thoughts and prayers.
New chemotherapy treatment
Dalen will start a new chemotherapy treatment for the next twelve months. We were heartbroken when we received this news because we were just two months from finishing a fourteen month treatment. Dalen and I was so disappointed of this news. We had planned for some well over due vacations trips.
The new treatment will be in pill form. Of course there are new side effects they we have to learn and get use to all over again. There is also a special diet Dalen has to be on. He can no longer eat any tyramine containing foods while taking one of the new chemotherapy pills.
I was grocery shopping recently and had a breakdown right in the middle of the shopping isle. Every food, snack, or drink I thought would be health for his diet contained either soy, yeast extract, nitrates, or nitrites. Those are some of the ingredients that Dalen can no longer have. Along with smoked, aged, fermented, and cured meats (lunch meat, pepperoni, sausage, bacon, corn beef, hot dogs, etc...). All fruits and vegetables must be fresh and eaten within two days of purchased to prevented any tyramine levels. He must stay away from citric fruits such oranges, lemons, grapefruit and pineapples. There is so much more we now must be aware and cautious of.
This journey will get better is what we tell ourselves for encouragement. But in reality we just want it to be better now. We started this journey in 2012 thinking it would only take fourteen months of treatments however we are now arriving to our fourth year. Life will never be the same!
Continue to keep Dalen in your thoughts and prayers.
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